Showing posts with label PCOS. Show all posts
Showing posts with label PCOS. Show all posts

Wednesday, June 10, 2009

A Smattering of Updates

Yesterday was a good day!

  1. I found out that the city is refunding ~$800 in overpaid taxes. The check should arrive this week and will promptly be deposited into a high yield savings account (anyone have a preferred online bank for these?)
  2. I called the State of Florida office that handles adoption information. Josette Marquess, the exceptionally nice and overworked handler of all non-identifying info, let me know she was dropping my information in the mail that same day!
  3. Jennifer, my favorite nurse for UTSW called me back about my test results and told me not to worry. She also told me not to obsessively seek info on the Internet (she knows me so well) and cause additional stress. They are probably just going to invite me in for a sono to check my cysts out. (While she didn't say it, I think the inference is that if the elevated E2 can be attributed to my PCOS, they are less worried about an artificially suppressed FSH- not sure, thought it makes me feel better to tell myself that)
  4. I ran/jogged/flailed at a decent pace for 2.5 miles- and felt like I had a little left to give. My recent re-engagement of a trainer, finding a gym in which I'm comfortable, and finding strength within my own body I didn't know I had has done amazing things for my confidence levels and sex drive (yeah, sorry if you didn't want to know that)
  5. I booked tickets for our trip to Pittsburgh for my Grandparents 50th wedding anniversary. We are staying with my "Aunt" Nancy's family. They have a baby girl I can't wait to meet. I'm giddy as I haven't been up there since high school. Oddly, even being the little Southern girl that I am, I really enjoy the Pittsburgh landscape. I think it was the first place I visited with so many Universities in area. My favorite memories are of Big Joe (my grandfather) taking me around Carnegie Mellon. I was SO impressed.

Monday, June 8, 2009

Shopping Around and Being a Drama Queen

So last week we had our "financial consult" with SIRM Dallas...

For for me to donate my eggs to be used for Janet to have IVF we are looking at the following costs:
Single Cycle with Ovum Donor, Gestational Carrier, or Ovum Donor & Gestational Carrier

$11,550.00

Included:
Office Visits
Venipunctures
Serum estradiol hormone tests
Ultrasound exams of uterus and ovary(ies)
Egg Retrieval including procedure room fee and surgical supplies
Culture and fertilization of embryos
Embryo Transfer (ET) with ultrasound guidance and supplies
Two (2) Beta hCG pregnancy tests

Not included:
Meds
Anesthesia Supplies
Anesthesia Provider
Assisted Hatching
ICSI, etc
(you get the picture)

Given that after our first meeting I wasn't exactly in love with Dr. Saleh- he wasn't capable of performing a miracle with my wife's beautiful ova- and using donor eggs is a fairly basic, fertility clinic procedure- We/I decided we needed to shop around. Doctors Le and Haas in Irving will work with lesbians (where one wants to donate an egg to the other- or at least that is what we've heard) and their fees appear to be SO much less! We have a consult with Dr. Haas this Thursday.

Due to my PCOS, Dr. Saleh asked me to come into his clinic for a day three FSH test and a glucose tolerance test. Not wanting to go to some fertility clinic where I lacked relationships, I opted to call my most favorite UT Southwestern. On Friday I did the glucose tolerance test and this morning I did the day three FSH. My favorite nurse Jennifer just left me a message with the FSH test results:

FSH: 6.9- good
E2- 88- not so good.

Jennifer said she was going to check with Dr. Wilson to see if she wanted me to come in to see if I have cysts, which are known to cause elevated E2 levels. Well my friends, I have PCOS- so of course I have cysts (or at least I did 2 years ago when I was diagnosed).

I'm now off to frantically search the Internet to find out what can be done to get the E2 levels down even though I have PCOS or at least determine if I should be worried- because right now I'm having a little coronary.

Friday, May 29, 2009

Loss and Hope

Loss and hope are what we are feeling in our household after phone consult over the phone with Dr. Saleh of SIRM.

While Janet had filled out lots-o-forms pre-consult, her actual records from Dr. Wilson's office had not yet made it over. We couldn't answer the specific questions like "what was her FSH level on day 3 and on day 10". All I could say was that I remembered she had been borderline.

Consult thoughts/feelings:
Dr. Saleh was about 30 minutes late in calling. Not abnormal for a doctor, but for some reason, waiting by the phone made both of us more anxious than if we were in the office. He was apologetic and patient as I conferenced Janet in. As was previously mentioned, during the chart review, he didn't have much to go on other than what we could recall. Who knows why charts take so long to get from point a to point b in the day and age of digital medical records... He was blunt but kind about our state of affairs which I appreciated. He was a bit remedial in explaining the details of ovarian reserve, declines with aging, etc, but I'm sure patients at the beginning of the process would have been more appreciative. When I disclosed my PCOS status as a potential egg donor, I didn't like that he questioned whether or not my PCOS diagnoses was real or not- I didn't go to a some backwoods doctor- I went to an expert in the field who gave me thorough review. Overall, he a little condescending but confident, competent, and straight forward.

During the consultation he expressed surprise that Janet had been encouraged/allowed to do 9 medicated IUI's at her age and hadn't been immediately encouraged to do IVF while she was still 44. I didn't really know how to respond. Dr. Wilson wasn't pushy and we weren't keen on the expense. In hindsight, it might have been worth it- aggregated cost of 9 medicated IUI's, sonograms, sperm would have probably equalled the cost of one IVF... Oh well.

The net of the overall conversation was that Janet has chosen to use use my eggs. This is where the sense of loss comes in. I can't imagine, for Janet, how it must feel to be told that you can't use your genetic material. I know that she must have some fantasies about her baby- his or her natural traits, etc. My heart weeps for her, for us. I think I've mentioned it in blog posts before, but I have dreams of our sturdy little boy or girl with her brown almond shaped eyes and round rear end- The little boy or girl with the silent but deadly sense of humor and the mischievous glimmer of the eye and an affinity for all things athletic.

On the hope side of the scale, we now have hope that we could have a baby this year, or at least she could be pregnant with one. I started to write "complete hope", but that isn't exactly true. I have PCOS impacted eggs- we have no idea how I'll respond to drugs, how the eggs could be impacted by insulin exposure, etc. We also don't know exactly how much all of this is going to cost and how we can pay for it. I have a feeling we are going to go the much advised against route of borrowing against the 401K's- at least we would be paying interest back to ourselves.

So, next steps with SIRM:
- Chart review with the IVF nurse: J & M
- "Financial" consult: J & M
- FSH testing: M
- Fasting insulin & glucose test: M

After we meet with the IVF nurse I'm sure I'll have more updates on the treatment protocols.

Friday, January 23, 2009

Off to the doctors office

I'm off to the doctors office this morning to find out how my reproductive system is working. A little over a year ago, I was diagnosed with PCOS- 10% of the female population have it, so I'm not going to moan about it, but it is a pain in my desiring-to-reproduce-a$$

So the mission today:

  • Determine the overall state of the "business"
  • Determine, if stimulated with the right drugs, if the "business" will produce viable ova, ripe for MBW's usage
  • Determine if UTSW will do the deed or if we are going to have to go to the baby making business in Bedford

Things I know:

  • I'm 10 lbs heavier than the last time I went in
  • I'm no longer on BCP's

On good notes:

  • We are invited to our dear friends' home for an evening of Weight Watchers friendly food
  • We still have an opportunity for a positive pregnancy test tonight or tomorrow]

Hope everyone is having a fabulous Friday!