Friday, May 29, 2009

Loss and Hope

Loss and hope are what we are feeling in our household after phone consult over the phone with Dr. Saleh of SIRM.

While Janet had filled out lots-o-forms pre-consult, her actual records from Dr. Wilson's office had not yet made it over. We couldn't answer the specific questions like "what was her FSH level on day 3 and on day 10". All I could say was that I remembered she had been borderline.

Consult thoughts/feelings:
Dr. Saleh was about 30 minutes late in calling. Not abnormal for a doctor, but for some reason, waiting by the phone made both of us more anxious than if we were in the office. He was apologetic and patient as I conferenced Janet in. As was previously mentioned, during the chart review, he didn't have much to go on other than what we could recall. Who knows why charts take so long to get from point a to point b in the day and age of digital medical records... He was blunt but kind about our state of affairs which I appreciated. He was a bit remedial in explaining the details of ovarian reserve, declines with aging, etc, but I'm sure patients at the beginning of the process would have been more appreciative. When I disclosed my PCOS status as a potential egg donor, I didn't like that he questioned whether or not my PCOS diagnoses was real or not- I didn't go to a some backwoods doctor- I went to an expert in the field who gave me thorough review. Overall, he a little condescending but confident, competent, and straight forward.

During the consultation he expressed surprise that Janet had been encouraged/allowed to do 9 medicated IUI's at her age and hadn't been immediately encouraged to do IVF while she was still 44. I didn't really know how to respond. Dr. Wilson wasn't pushy and we weren't keen on the expense. In hindsight, it might have been worth it- aggregated cost of 9 medicated IUI's, sonograms, sperm would have probably equalled the cost of one IVF... Oh well.

The net of the overall conversation was that Janet has chosen to use use my eggs. This is where the sense of loss comes in. I can't imagine, for Janet, how it must feel to be told that you can't use your genetic material. I know that she must have some fantasies about her baby- his or her natural traits, etc. My heart weeps for her, for us. I think I've mentioned it in blog posts before, but I have dreams of our sturdy little boy or girl with her brown almond shaped eyes and round rear end- The little boy or girl with the silent but deadly sense of humor and the mischievous glimmer of the eye and an affinity for all things athletic.

On the hope side of the scale, we now have hope that we could have a baby this year, or at least she could be pregnant with one. I started to write "complete hope", but that isn't exactly true. I have PCOS impacted eggs- we have no idea how I'll respond to drugs, how the eggs could be impacted by insulin exposure, etc. We also don't know exactly how much all of this is going to cost and how we can pay for it. I have a feeling we are going to go the much advised against route of borrowing against the 401K's- at least we would be paying interest back to ourselves.

So, next steps with SIRM:
- Chart review with the IVF nurse: J & M
- "Financial" consult: J & M
- FSH testing: M
- Fasting insulin & glucose test: M

After we meet with the IVF nurse I'm sure I'll have more updates on the treatment protocols.


Anonymous said...

That is quite the emotional roller coaster in one conversation. I hope all of the testing/consulting goes well. In the meantime, my thoughts are with you girls.

Pufferfish said...

I just wanted to let you know that I understand exactly what Janet is going through. I tried for a year to use my own eggs and at age 39 decided to use my younger partner's eggs instead.
I really hope this works out for you!
BTW--if it makes you feel any better--if you were to have to do this in NYC, it would cost you at least double! My jaw dropped at your quoted price!